Resources for Illnesses and Conditions
Information for Caregivers
Resources for Home Care
Government Resources and Agencies
Additional Resources
Caregiver Organizations, Information, Advocacy and Support Resources
Caregiver-Specific Web Sites
Caring for Elders
End-of-Life Planning, Hospice and Bereavement Information
Financial Help for Health Insurance and Prescription Drugs
Advocacy Assistance
Health Insurance: Prescription Assistance Information
Homecare Agencies, Assisted Living and Nursing Homes
Medical Transport and Hospitality Housing
Respite Resources
Training for Family Caregivers
Voluntary Health Agencies
Additional Volunteer Health Agencies
Organization for Those with Rare Disorders
Information on Illnesses and conditions:
ALZHEIMER'S ASSOCIATION
www.alz.org
ALZHEIMER'S DISEASE EDUCATION AND REFERRAL CENTER
www.alzheimers.org
AMERICAN ASSOCIATION FOR GERIATRIC PSYCHIATRY
www.aagpgpa.org
AMERICAN CANCER SOCIETY
www.cancer.org
AMERICAN DIABETES ASSOCIATION
www.diabetes.org
AMERICAN GERIATRICS SOCIETY
www.americangeriatrics.org
AMERICAN HEART ASSOCIATION
www.americanheart.org
AMERICAN PARKINSON DISEASE ASSOCIATION
www.apdaparkinson.org/user/index.asp
ARTHRITIS FOUNDATION
www.arthritis.org
LIGHTHOUSE INTERNATIONAL
www.lighthouse.org
NATIONAL STROKE ASSOCIATION
www.stroke.org
Information for Caregivers:
AARP CAREGIVING PAGE
CAREGIVING.COM
CHILDREN OF AGING PARENTS
ELDER RAGE
www.elderrage.com
A few years ago,
Jacqueline Marcell
was so compelled by the heart-wrenching experience of caring for her elderly parents, both with the beginning of Alzheimer's disease she gave up a fifteen-year career as a television executive to become an advocate for eldercare awareness and reform.
FAMILY CAREGIVER ALLIANCE
www.caregiver.org
HOW TO CARE
www.howtocare.com
NATIONAL FAMILY C AREGIVERS ASSOCIATION
www.nfcacares.org
NATIONAL FAMILY CAREGIVER SUPPORT PROGRAM
www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp
Information on Home Care:
NATIONAL ASSOCIATION FOR HOME CARE AND HOSPICE
Government Resources and Agencies:
ADMINISTRATION ON AGING
www.aoa.gov
Additional Resources:
CAREPATHWAYS.COM
www.carepathways.com
COPING with CAREGIVING
www.wsradio.com/copingwithcaregiving
“Coping with Caregiving” is a monthly, Internet-only radio program heard free worldwide 24/7
ELDER CARE BLOG
http://blog.thirdage.com/?author=12
Elder Care Blog on ThirdAge.com
MEALS ON WHEELS
www.mowaa.org
NATIONAL CENTER ON WOMEN AND AGING
www.heller.brandeis.edu/national/ind.html
NATIONAL COUNCIL ON THE AGING
www.ncoa.org
PROVIDENT COUNSELING
www.providentc.org
SMALL COMFORTS FOUNDATION
www.smallcomforts.org
Caregiver Organizations, Information, Advocacy and Support Resources
Children of Aging Parents (CAPS)
1609 Woodbourne Road, Suite 302A
Levittown, PA 19057
800-227-7294
Web site: http://www.caps4caregivers.org
Family Caregiver Alliance (FCA)
690 Market Street, Suite 600
San Francisco, CA 94104
415-434-3388
800-445-8106
Web site: http://www.caregiver.org
Family Voices, Inc.
3411 Candelaria NE, Suite M
Albuquerque, NM 87107
888-835-5669
Web site: http://www.familyvoices.org
Friends' Health Connection
PO Box 114
New Brunswick, NJ 08903
800-483-7436
Web site: http://www.48friend.org
National Alliance for Caregiving
4720 Montgomery Lane, 5th Floor
Bethesda, MD 20814
Web site: http://www.caregiving.org
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895
800-896-3650
Web site: http://www.thefamilycaregiver.org
Rosalynn Carter Institute for Human Development (RCI)
800 Wheatley Street
Americus, GA 31709
229-928-1234
Web site: http://www.rci.gsw.edu
Well Spouse Foundation
63 West Main Street, Suite H
Freehold, NJ 07728
800-838-0879
Web site: http://www.wellspouse.org
Caregiver-Specific Web Sites
http://www.caregiver.org
http://www.thefamilycaregiver.org
http://www.caregiving.org
http://www.caregiving.com
http://www.caregiver.com
http://www.aarp.org/families/caregiving/
Caring for Elders
AARP
601 E Street, NW
Washington, DC 20049
800-424-3410
Web site: http://www.aarp.org
Eldercare Locator
National Association of Area Agencies on Aging
927 15th Street, NW, 6th floor
Washington, DC 20005
800-677-1116
Web site: http://www.n4a.org or http://www.eldercare.gov
The National Association of Professional Geriatric Care Managers
1604 North Country Club Road
Tucson, AZ 85716
520-881-8008
Web site: http://www.caremanager.org
U.S. Administration on Aging
Department of Health and Human Services
Washington, DC 20201
202-619-0724
Web site: http://www.aoa.gov
End-of-Life Planning, Hospice, and Bereavement Information
Aging with Dignity
PO Box 1661
Tallahassee, FL 32302-1661
888-5-WISHES (594-7437)
Web site: http://www.agingwithdignity.org
Hospice Foundation of America
2001 S Street, NW, Suite 300
Washington, DC 20009
800-854-3402
Web site: http://www.hospicefoundation.org
Last Acts
Web site: http://www.lastacts.org
National Hospice and Palliative Care Organization
1700 Diagonal Road, Suite 625
Alexandria, VA 22314
800-658-8898
Web site: http://www.nhpco.org
The Compassionate Friends
P.O. Box 3696
Oak Brook, IL 60522
877-969-0010
Web site: http://www.compassionatefriends.org
Financial Help for Health Insurance and Prescription Drugs
Benefits Check-Up and Benefits Check-Up RX
Web sites: http://www.benefitscheckup.org
Hill-Burton Free Medical Care Program
800-638-0742
Web site: http://www.hrsa.gov/osp/dfcr
HealthInsurance.com
800-942-9019
Web site: http://www.healthinsurance.com
Medicine Program
PO Box 515
Doniphan, MO 63935
573-996-7300
Web site: http://www.themedicineprogram.com
Advocacy Assistance
Medicare Rights Center
1460 Broadway, 11th Floor
New York, NY 10036
888-HMO-9050
Web site: http://www.medicarerights.org
Patient Advocate Foundation
700 Thimble Shoals Boulevard, Suite 200
Newport News, VA 23606
800-532-5274
Web site: http://www.patientadvocate.org
Health Insurance: Prescription Assistance Information
Medicare Rights Center
1460 Broadway, 11th Floor
New York, NY 10036
212-869-3850
Web site: http://www.medicarerights.org
Homecare Agencies, Assisted Living and Nursing Homes
The Eden Alternative
100 Melody Way,
Suite D
Wimberley, TX 78676
Telephone: 512-847-6061
FAX: 512-847-6191
Web site: http://www.edenalt.com
Consumer Consortium on Assisted Living
2342 Oak Street
Falls Church, VA 22046
703-533-8121
Web site: http://www.ccal.org
National Citizens' Coalition for Nursing Home Reform
1424 16th Street, NW, Suite 202
Washington, DC 20036
202-332-2275
Web site: http://www.nccnhr.org
National Association for Home Care and Hospice
228 7th Street, SE
Washington, DC 20003
202-547-7424
Web site: http://www.nahc.org
New LifeStyles
4144 N. Central Expressway, Suite 1000
Dallas, TX 75204
800-869-9549
Web site: http://www.NewLifeStyles.com
Visiting Nurse Associations of America
617-737-3200
Web site: http://www.vnaa.org
Medical Transport and Hospitality Housing
National Association of Hospital Hospitality Houses (NAHHH)
P.O. Box 18087
Asheville, NC 28814
800-542-9730
Web site: http://www.nahhh.org
National Patient Travel Center
Mercy Medical Airlift
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
800-296-1217
Web site: http://www.PatientTravel.org
Respite Care Resources
Easter Seals
230 West Monroe Street, Suite 1800
Chicago, IL 60606
800-221-6827
Web site: http://www.easter-seals.org
Faith in Action
Wake Forest University School of Medicine
Medical Center Boulevard
Winston-Salem, NC 27157
877-324-8411
Web site: http://www.fiavolunteers.org
Family Friends
National Council on the Aging, Inc.
409 Third Street, SW
Washington, DC 20024
202-479-6672
Web site: http://www.family-friends.org
National Adult Day Services Association, Inc.
8201 Greensboro Drive, Suite 300
McLean, VA 22102
866-890-7357
Web site: http://www.nadsa.org
National Respite Coalition
4016 Oxford Street
Annandale, VA 22003
703-256-9578
Web site: http://www.archrespite.org/NRC.htm
National Respite Locator Service
800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
800-473-1727, ext. 222
Web site: http://www.respitelocator.org/index.htm
Shepherd's Centers of America
One West Armour Boulevard, Suite 201
Kansas City, MO 64111
800-547-7073
Web site: http://www.shepherdcenters.org
Training for Family Caregivers
American Red Cross
2025 E Street, NW
Washington, DC 20006
202- 303-4498
Web site: http://www.redcross.org
National Family Caregivers Association
10400 Connecticut Avenue
Kensington, MD 20895
Web site: http://www.thefamilycaregiver.org
Voluntary Health Agencies
This list was provided by the National Health Council
Web site: http://www.nhcouncil.org
Alzheimer's Association
Toll-free: 800-272-3900
Web site: http://www.alz.org
American Autoimmune Related Diseases Association
Toll-free: 800-598-4668
Web site: http://www.aarda.org
American Cancer Society
Toll-free: 800-ACS-2345
Web site: http://www.cancer.org
American Diabetes Association
Toll-free patient information: 800-342-2383
Web site: http://www.diabetes.org
American Foundation for AIDS Research
Toll-free: 800-39-AMFAR (392-6327)
Web site: http://www.amfar.org
American Heart Association
Toll-free: 800-AHA-USA1 (242-8721)
Web site: http://www.americanheart.org
American Kidney Fund
Toll-free Help Line: 800-638-8299
Web site: http://www.kidneyfund.org or http://www.akfinc.org
American Liver Foundation
Toll-free: 800-GO-LIVER (465-4837) or 888-4HEP-USA (443-7872)
Web site: http://www.liverfoundation.org
American Lung Association¨
Toll-free number to connect to local
American Lung Association offices: 800-LUNG-USA
Web site: http://www.lungusa.org
American Stroke Association
Toll-Free: 888-4-STROKE (478-7653)
Web site: http://www.strokeassociation.org
American Tinnitus Association
Toll-free: 800-634-8978
Web site: http://www.ata.org
Amyotrophic Lateral Sclerosis Association
Toll-free: 800-782-4747
Web site: http://www.alsa.org
Arthritis Foundation
Toll-free 800-283-7800
Web site: http://www.arthritis.org
Asthma & Allergy Foundation of America
Toll-free: 800-7-ASTHMA
Web site: http://www.aafa.org
Cancer Research and Prevention Foundation
Toll-free: 800-227-CRFA (227-2732)
Web site: http://www.preventcancer.org
CHADD
(Children and Adults with Attention-Deficit/Hyperactivity Disorder)
Toll-free: 800-233-4050
Web site: http://www.chadd.org
Crohn's & Colitis Foundation of America
Toll-free: 800-343-3637 (to order brochures and for general information)
Web site: http://www.ccfa.org
Easter Seals
Toll-free: 800-221-6827
Web site: http://www.easter-seals.org
Epilepsy Foundation
Toll Free: 800-332-1000
Web site: http://www.epilepsyfoundation.org
The Foundation Fighting Blindness
Toll-free: 888-394-3937
Web site: http://www.blindness.org
Huntington's Disease Society of America
Toll-free: 800-345-HDSA
Web site: http://www.hdsa.org
Kidney Cancer Association
Toll-free: 800-850-9132
Web site: http://www.kidneycancerassociation.org
The Leukemia & Lymphoma Society
Toll-free: 800-955-4572
Web site: http://www.leukemia-lymphoma.org
Lupus Foundation of America
Toll-free information request line: 800-558-0121
Web site: http://www.lupus.org
March of Dimes Birth Defects Foundation
March of Dimes Resource Center
Toll-free: 888-663-4637
Web site: http://www.modimes.org
Myasthenia Gravis Foundation of America
Toll-free: 800-541-5454
Web site: http://www.myasthenia.org
Myositis Association
Toll-free: 800-821-7356
Web site: http://www.myositis.org
National Down Syndrome Society
Toll-free: 800-221-4602
Web site: http://www.ndss.org
National Hemophilia Foundation
Toll-free: 800-42-HANDI (424-2634)
Web site: http://www.hemophilia.org
National Mental Health Association
Toll Free: 800-969-NMHA (6642)
Web site: http://www.nmha.org
National Multiple Sclerosis Society
Toll-free: 800-FIGHT-MS (344-4867)
Web site: http://www.nationalmssociety.org or http://www.nmss.org
National Osteoporosis Foundation
202-223-2226
Web site: http://www.nof.org
National Psoriasis Foundation
Toll-free: 800-723-9166
Web site: http://www.psoriasis.org
National Sleep Foundation
202-347-3471
Web site: http://www.sleepfoundation.org
Osteogenesis Imperfecta Foundation
Toll-free: 800-981-BONE (2663)
Web site: http://www.oif.org
The Paget Foundation
Toll-free: 800-23-PAGET (237-2438)
Web site: http://www.paget.org
Sjogren's Syndrome Foundation
Toll-Free: 800-475-6473
Web site: www.sjogrens.org
Spina Bifida Association of America
Toll-free: 800-621-3141
Web site: http://www.sbaa.org
Tourette Syndrome Association, Inc.
Toll-free: 888-4-TOURET (486-8738)
Web site: http://www.tsa-usa.org
Tuberous Sclerosis Alliance
Toll-free: 800-225-6872
Web site: http://www.tsalliance.org
United Ostomy Association
Toll-free: 800-826-0826
Web site: http://www.uoa.org
Additional Volunteer Health Agencies
American Parkinson Disease Association
1250 Hylan Boulevard, Suite 4-B
Staten Island, NY 10305
Toll-Free: 800-223-2732
Web site: www.apdaparkinson.org
United Cerebral Palsy
1660 L Street, NW, Suite 700
Washington, DC 20036
Toll-Free: 800-872-5827
Web site: www.ucpa.org
Cystic Fibrosis Foundation
6931 Arlington Road Bethesda, MD 20814
Toll-Free: 800-FIGHT CF (344-4823)
Web site: www.cff.org
Organization for Those with Rare Disorders
National Organization for Rare Disorders
P.O. Box 1968
Danbury, CT 06813
Toll-Free: 800-999-6673
Web site: http://www.rarediseases.org
